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To help raise awareness of FIRES I have shared daily extracts from my personal diary from when Sam became ill on the 22 March to when he passed on the 8 May. My hope is that this will help show what a cruel, horrific and catastrophic syndrome FIRES is and we need desperately need more UK RESEARCH.
Let's make Sam the last child to lose his life from this horrific syndrome.
To read my FIRES diaries click here
To donate to FIRES research click here
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