A CHALLENGE SET TO CAPTURE HEARTS AND MINDS

IN MEMORY OF A BOY CALLED SAM

 

Sam's Big Scoot

 

Further details and how you can support

The challenge

On Friday 20 September 2024 our team will kick scoot from Aston University in BIRMINGHAM to Sam's hometown of DERBY to help raise £50,000 for children's UK FIRES* research. A journey of 44 miles over 3 days with no electric scooter in sight, just sheer determination! 

  • Our core team will scoot for three days plus a tag team will join us for half or full days.
  • On the final day, many more of Sam’s friends and Sam’s Superheroes supporters will join us as we make the final journey into his hometown.
  • Sam is the heart and soul of this challenge, he adored his red scooter and rode it everywhere.
  • Sam's mum Rachel, will carry that scooter on her back throughout the challenge, ensuring Sam is very much a part of the team!
  • Finish line celebrations at The Robin in Mickleover on Sunday 22 September. A fun filled event for all the family.

*Febrile Infection Related Epilepsy Syndrome.

 

To donate

 

To donate to our FIRES fundraiser, head over to our Just Giving page click here. All donations are gratefully appreciated. 

 

The purpose

 

Our fundraising challenge has two primary goals.

 

  • The first is to raise awareness of FIRES to attract more research. The causes of FIRES are still unknown, and there are currently no effective treatments FIRES is desperately under-researched, with the first and only UK FIRES research study not starting until 2023.

 

  • Our second goal is to urgently raise as much money as possible to help fund further research. Whilst we could not save Sam, we can help save other children. Support this challenge, and you could help save children’s lives...what an IMPACT you could make!

 

How you can support

 

Take a look at our Sam's Big Scoot brochure to see how you can support. You can support us in so many different ways:

- generating awareness of our challenge

- helping with the logistics of the challenge such as providing kit, scooters, promotional printing, t-shirt printing, helmets, hotel stays, travel, food and drink etc, or

- make a donation via Just Giving

- you could support us with a financial sponsorship package.  

Further details and how you can support

 

Our team

 

Our team is incredible and located across the UK and united in #FindACureForFIRES. It team includes: doctors, researchers, NHS workers, accountants, engineers, students, a graphic designer, a psychotherapist, and teachers. Age is no barrier, Sam’s 85 year old nana is in our back-up team! Plus, Sam’s dog Daisy is playing a key role! 

 

And whilst the team are awesome we are just ORDINARY PEOPLE, not super fit, we don't normally scoot, but we are full of LOVE for my son and passionate about hashtag#FindACureForFIRES. As they say, "love can move mountains" and that is precisely what we hope to do.

 

We would love more people to join our scoot, it will be a fun and unique experience! No is experience needed, you just need to tap into your inner child!

Scooter Team

 

 

Training

 

 

 

 

 

  • We are thrilled to be partnering with an incredible team of NHS Doctors and Research Fellows from Great Ormond Street Hospital and Aston University, Birmingham for this scoot. These experts are at the forefront of UK children’s FIRES research.
  •  And, we are also delighted to have the expert guidance and support of the renowned Bex Band, an adventurer and founder of ‘Love Her Wild,’ the UK’s largest women’s adventure community. Bex is also a bestselling author and blogger, and a true kick scooting pro!

 

Can you join our scoot?

 

YES! We would love more people to join our scoot! It will be a fun and unique experience! No experience needed, just tap into your inner child! If you would like to join our scoot team you can:

 

  • Scoot from half a day to the full three days,
  • Scoot the final mile with us as we go through Mickleover
  • Join our backup team
  • Minimum age for either half day or full day scoots is 16, and you must be accompanied by an adult.
  • Minimum age to join our scoot in Mickleover for the homeward stretch, is four years old. All children must be accompanied by an adult.
  • An entry form must be completed and entry fee levels are detailed below.

 

How to join our scoot

 

1. To join us for either half a day or for the full three days, you will need to complete a short entry form and pay an entry fee. There are two levels of entry fees and you will be expected to also raise sponsorship. 

 

  • £25 entry fee: You need to provide your own scooter. You will receive a t-shirt, finishing medal and certificate.
  • £100 entry fee: We will provide you with a loaned scooter. You will receive a t-shirt, finishing medal and certificate.

 

 2. To join our scoot as we enter into Mickleover (suitable for children of all ages):

 

  • FREE Entry: Scoot or walk with us as we enter Mickleover to give us much needed support over the last couple of miles to the finish line? This is suitable for children of all ages, but you MUST COMPLETE AN ENTRY FORM. We would appreciate if you could raise some level of sponsorship if you are scooting with us. 

 

 Drop us an email rachel@samssuperheroes.co.uk or click here so we can send you an entry form.

 

 

Why not hold your own fundraiser?

 

 

If you can't make Sam's Big Scoot, why not hold your own fundraiser? You could even hold your own Sam’s LITTLE Scoot

 

  • anywhere,
  • anytime,
  • any distance

 

Drop us an email at rachel@samssuperheroes and we will support you in anyway we can.

 

 

What is FIRES?

 

 

FIRES, or Febrile Infection Related Epilepsy Syndrome, is a rare and catastrophic condition that affects healthy children with no prior history of epilepsy or seizures. The seizures begin suddenly and explosively following a simple febrile infection or virus, rapidly progressing into relentless seizure activity that is exceptionally difficult to stop.

 

Children often remain in an induced coma for weeks to months, with life-changing impacts. One in five children die during the acute stage, and those who survive often suffer significant neurological disabilities and life-long epilepsy. There are currently children fighting FIRES in the UK, with three cases in the East Midlands alone in the last three years.

 

About Sam

 

Sam was beautiful, kind, loving, caring and joyful. He adored cuddling up to his dog Daisy and exploring the great outdoors. Shy with people he didn’t know, he was articulate and had wisdom beyond his years. Sam loved superheroes and making his family and many friends laugh!

 

He was a healthy child and rarely ill, but just after his 5th birthday, Sam and his family were catapulted head-first into a battle to save his life from the sudden onset of FIRES. After a seven-week fight in paediatric critical care at Queen’s Medical Centre in Nottingham, our beautiful Sam passed away due to catastrophic and irreversible brain damage, caused by his relentless seizure activity from FIRES.

 

 

Social media

 

Follow us on Social Media for updates, and keep an eye on our event page for more details

 

Facebook @ TeamSamsSuperheroes click here

 

Instagram: SamsSuperheroesTherapyDogs click here

 

 

Business sponsorship packages

 

To be part of this amazing challenge, together with details on our Business Sponsorship Packages see below. Our sponsorship packages start from as low as £200. And it is not just about financial support, we need help with logistics, hotel stays, food and drink for the challenge, kit, marketing etc.

 

If you would like further details please email rachel@samssuperheroes.co.uk or call Rachel on 07880343416.

 

Further details and how you can support

 

 

Current supporters and sponsors

 

 

A massive thank you to:

 

  • Ashgates Accountancy in Derby who have supported Sam’s Superheroes for three years www.ashgates.co.uk
  • The Robin in Mickleover who are hosting our celebrations once we cross the finish line!
  • Our Mickleover, a community organisation in our local town
  • Bex Band an adventurer and founder of ‘Love Her Wild,’ the UK’s largest women’s adventure community www.theordinaryadventurer.com

 


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