Blog by Tag: #FEBRILEINFECTIONRELATEDEPILEPSYSYNDROME

A Mother's Love

- Day 2: Wednesday 24 March 2021

Location: Nottingham Queens Medical Centre, Paediatric Critical Care Unit

09:30 Last night was not great for Sam. He is still having seizures, but they are trying different medications to get on top of them. However, they initially…

OUR PERFECT LIFE

Three years ago today at 8pm, was when my perfect, yet ordinary family life was blown apart and changed forever in the most tragic of ways. That morning when my son Sam and I woke up we were totally oblivious to how our day would unfold and what catastrophic,…

With the start of the new year, and a very busy few months I thought it was time to give people another update. I am sorry that I have been quiet of late. I had big plans for the start of the new year. But I will be fully honest, the start of the new year has hit me hard. It has, in a nutshell,…

Six months ago today, 8 May 2021, the most catastrophic, earth shattering, heart-breaking event happened; my beautiful son took his last breath. I invite you to LIGHT a CANDLE in MEMORY of SAM this EVENING, take a photo and post it on our Facebook page to show your love and support for our…

Happy HALLOWEEN to all our wonderful Sam's Superheroes Supporters. We hope you a lovely day, and we thought this photo of Sam and Daisy will allow you to remember Sam today with a smile. Sam was 4 and half years old at the time. 

It is from this time last year when Sam's daddy dressed Sam and…

Today is a tough memory day, bitter sweet. Sam and I went on our last holiday together this time last year, with our very special friends Becky and her daughter Holly.

We went to Norfolk staying in a Safari tent for five days, and what a fabulous time we had. We were so lucky that it didn't get…