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Sam's Fires Diary - Day 16
Day 16 of Sam's FIRES Diary
Wednesday 7 April 2021
Creating Awareness of Febrile Infection Related Epilepsy Syndrome
Location: Nottingham Queens Medical Centre, Paediatric Critical Care Unit
Extracts taken from diary and text updates sent to family and friends.
10am I…
Sam's Fires Diary - Day 15
Day 15 of Sam's FIRES Diary
Tuesday 6 April 2021
Creating Awareness of Febrile Infection Related Epilepsy Syndrome (FIRES)
Location: Nottingham Queens Medical Centre, Paediatric Critical Care Unit
Extracts taken from diary and text updates sent to family and friends.
10am…
Sam's Fires Diary - Day 11
Day 11 of Sam's FIRES Diary
Tuesday 2 April 2021
Location: Nottingham Queens Medical Centre, Paediatric Critical Care Unit
Extracts taken from diary and text updates sent to family and friends.
12pm Sam has one of our favourite nurses on today. He was very up and down last…
Sam's Fires Diary - Day 10
Day 10 of Sam's FIRES Diary
Tuesday 1 April 2021
Location: Nottingham Queens Medical Centre, Paediatric Critical Care Unit
Extracts taken from diary and text updates sent to family and friends.
7am I got to bed around midnight last night. Waking up is incredibly painful. The…
Sam's Fires Diary - Day 9
Day 9 of Sam's FIRES Diary
Tuesday 31 March 2021
Location: Nottingham Queens Medical Centre, Paediatric Critical Care Unit
Extracts taken from diary and text updates sent to family and friends.
11am As usual I woke up feeling incredibly anxious. I feel I am in a permanent state…
Sam's Fires Diary - Day 8
Day 8 of Sam's FIRES Diary
- Tuesday 30 March 2021
Location: Nottingham Queens Medical Centre, Paediatric Critical Care Unit
Extracts taken from diary and text updates sent to family and friends.
8am I got to bed around midnight. I woke up feeling incredibly anxious. I actually…
Day 6
Day: 6
Date: Sunday 28 March 2021
Location: Nottingham Queens Medical Centre, Paediatric Critical Care Unit
10:30am As the main ward is more noisy than the isolation room Sam is wearing ear plugs as we think noise and touch may be a trigger for his seizures. Last night the nurse also…
Day 4
Day 4 of Sam's FIRES Diary
- Friday 26 March 20216
Location: Nottingham Queens Medical Centre, Paediatric Critical Care Unit
2.30pm My brother has sent over a video of a story he has read for Sam with, called “The Day the Crayons Quit” and a video message from his cousins. Such a fab idea…
Day 3
A Mother's Love
- Thursday 25 March 2021
Location: Nottingham Queens Medical Centre, Paediatric Critical Care Unit
08:00 Sam had a fair night. He is sedated to the level of a general anesthetic, he can’t really be sedated any further. They are still trying to rest his brain, so it…
Day 2
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A Mother's Love
- Day 2: Wednesday 24 March 2021
Location: Nottingham Queens Medical Centre, Paediatric Critical Care Unit
09:30 Last night was not great for Sam. He is still having seizures, but they are trying different medications to get on top of them. However, they initially…
Day 0 to 1
A Mother's Love
- Diary from Monday evening 22 March to Tuesday 23 March
20:45 We arrived at the hospital, Sam fitted it was horrendous. It lasted 30 minutes, and I cannot begin to say how frightening it was, I thought I was going to lose him. He is asleep, we are waiting for a doctor,…
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