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Sam's Fires Diary - Day 15
Day 15 of Sam's FIRES Diary
Tuesday 6 April 2021
Creating Awareness of Febrile Infection Related Epilepsy Syndrome (FIRES)
Location: Nottingham Queens Medical Centre, Paediatric Critical Care Unit
Extracts taken from diary and text updates sent to family and friends.
10am…
Sam's Fires Diary - Day 14
Day 14 of Sam's FIRES Diary
Monday 5 April 2021
Location: Nottingham Queens Medical Centre, Paediatric Critical Care Unit
Extracts taken from diary and text updates sent to family and friends.
Just a short diary update for today.
12pm Sam had a stable night which I am…
Sam's Fires Diary - Day 12
Day 12 of Sam's FIRES Diary
Wednesday 3 April 2021
Location: Nottingham Queens Medical Centre, Paediatric Critical Care Unit
Extracts taken from diary and text updates sent to family and friends.
12pm It’s a big day today, plasma exchange day. I woke up with a bit of hope in…
Sam's Fires Diary - Day 9
Day 9 of Sam's FIRES Diary
Tuesday 31 March 2021
Location: Nottingham Queens Medical Centre, Paediatric Critical Care Unit
Extracts taken from diary and text updates sent to family and friends.
11am As usual I woke up feeling incredibly anxious. I feel I am in a permanent state…
Sam's Fires Diary - Day 8
Day 8 of Sam's FIRES Diary
- Tuesday 30 March 2021
Location: Nottingham Queens Medical Centre, Paediatric Critical Care Unit
Extracts taken from diary and text updates sent to family and friends.
8am I got to bed around midnight. I woke up feeling incredibly anxious. I actually…
Sam's Fires Diary - Day 7
Day 7 of Sam's FIRES Diary
- Monday 29 March 2021
Location: Nottingham Queens Medical Centre, Paediatric Critical Care Unit
Extracts taken from diary and text updates sent to family and friends.
9am Woke up feeling sick with nerves. Today is a big day as Sam is due to have his…
Day 4
Day 4 of Sam's FIRES Diary
- Friday 26 March 20216
Location: Nottingham Queens Medical Centre, Paediatric Critical Care Unit
2.30pm My brother has sent over a video of a story he has read for Sam with, called “The Day the Crayons Quit” and a video message from his cousins. Such a fab idea…
Day 3
A Mother's Love
- Thursday 25 March 2021
Location: Nottingham Queens Medical Centre, Paediatric Critical Care Unit
08:00 Sam had a fair night. He is sedated to the level of a general anesthetic, he can’t really be sedated any further. They are still trying to rest his brain, so it…
Day 2
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A Mother's Love
- Day 2: Wednesday 24 March 2021
Location: Nottingham Queens Medical Centre, Paediatric Critical Care Unit
09:30 Last night was not great for Sam. He is still having seizures, but they are trying different medications to get on top of them. However, they initially…
One Year On: Part 1 'Hope'
One Year On: Part 1 'Hope'
This time last year was the final week of Sam’s life. I just wanted to reflect on Sam’s life and his time in hospital. The first part of my blog this week will focus on Sam’s courageous fight during his last week, and how hope was so important to us. Part 2 will…
6 Months On
Six months ago today, 8 May 2021, the most catastrophic, earth shattering, heart-breaking event happened; my beautiful son took his last breath. I invite you to LIGHT a CANDLE in MEMORY of SAM this EVENING, take a photo and post it on our Facebook page to show your love and support for our…
Happy Halloween
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Happy HALLOWEEN to all our wonderful Sam's Superheroes Supporters. We hope you a lovely day, and we thought this photo of Sam and Daisy will allow you to remember Sam today with a smile. Sam was 4 and half years old at the time.
It is from this time last year when Sam's daddy dressed Sam and…
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